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 | Data Sources/Statistics |
 | Social Science/Health Data Sources |
 | Meta Sites |
| Data on the Net - Social Science Data Collection - University of California San Diego Listing of 851 Internet sites of numeric Social Science statistical data, data catalogs, data libraries, social science gateways, addresses and more. | |
| Inter-university Consortium for Political and Social Science (ICPSR) - Other Social Science Data Sites Links to Internet sites for data, data catalogs, data libraries, social science gateways, etc. | |
| National Association of Health Data Organizations - Links to State-Developed Datasets Not-for-profit membership organization dedicated to strengthening the nation's health information system. | |
| National Library of Medicine (NLM) - Databases and Electronic Information Sources Links to numerous resources in the biomedical and health sciences. | |
| NLM Gateway Allows users to search in multiple retrieval systems at the U. S. National Library of Medicine (NLM). Designed for the Internet user who is new to NLM's online resources and does not know what information is available there or how best to search for it. | |
| Social Science Data Archive (SSDA) - Yale University Repository and reference center for machine-readable data sources in the social sciences including academic surveys, public opinion surveys, government agencies, international organizations, and related groups. | |
| Specific Sites |
| Administration for Children and Families (ACF) Responsible for federal programs that promote the economic and social well-being of families, children, individuals, and communities. | |
| Administration on Aging (AOA) Supports comprehensive in-home and community services for older persons. | |
| Agency for Healthcare Research and Quality (AHRQ) - (formerly the Agency for Health Care Policy and Research) Supports research designed to improve the quality of health care,reduce its cost, and broaden access to essential services. | |
| Agency for Healthcare Research and Quality (AHRQ) - Data and Surveys | |
| AHRQ - Information Product Search (data, surveys, etc) Search the bibliographic records of information products from AHRQ. | |
| Center for Health Administration Studies at the University of Chicago - National Data Links to sites containing health data. | |
| CMS 102: Conducting Research with Medicaid Claims Data ResDAC's CMS102 workshop provides information on the development, structure and application of the Medicaid Analytic Extract (MAX) files. The new CMS MAX files replace the SMRF (State Medicaid Research Files) for data from 1999 forward. If you are working with older CMS data in the SMRF format, this workshop will still be pertinent. In addition to information on the MAX files, workshop sessions will also focus on tools and resources that support research using Medicaid administrative data. Two such tools are risk-adjustment models. One of these models is the Chronic Illness and Disability Payment System (CDPS), a diagnostic-based classification system developed to assess risk and adjust capitated payments to health plans enrolling Medicaid beneficiaries. The second is Medicaid Rx, a risk assessment and adjustment model that uses prescription claims data. | |
| Department of Health and Human Services (DHHS) United States government's principal agency for protecting the health of all Americans and providing essential human services, especially for those who are least able to help themselves. | |
| Directory of the Department of Health and Human Services Data Resources | |
| Healthcare Cost and Utilization Project (HCUP) | |
| HEDIS - The Health Plan Employer Data and Information Set HEDIS is a set of standardized performance measures designed to ensure that purchasers and consumers have the information they need to reliably compare the performance of managed health care plans. | |
| ICPSR - Inter-university Consortium for Political and Social Science (archive of computer-based research) - University of Michigan | |
| Massachusetts Health Data Consortium | |
| Medical Expenditure Panel Survey (MEPS) | |
| Minority Health Databases - provided by the Minority Health Project, University of North Carolina at Chapel Hill On-line catalog containing descriptions of data relevant to the health of racial and ethnic minority populations in the United States. | |
| National Center for Health Statistics - Public-use Data Files and Documentation Provides access to data sets, documentation, and questionnaires from NCHS surveys and data collection systems. | |
| National Library of Medicine (NLM) World's largest biomedical library. Collects material in all major areas of the health services and in chemistry, physics, botany, and biology. | |
| National Longitudinal Study of Adolescent Health | |
| Partners in Information Access for the Public Health Workforce A collaboration of U.S. government agencies, public health organizations and health sciences libraries to help public health workforce find and use information effectively to improve and protect the public's health. | |
| Population Reference Bureau (PRB) Provides information on United States and international population trends and their implications as well as health topics. Also provides a reference service to answer questions on demographic topics. | |
| Social Science and Government Data Library - Maintained by UC Berkeley Digital Library Sunsite Provides access to 1990 Census of Population and Housing, 1990 Census Lookup, and files available for FTP such as: Public Use Microdata Samples, County and City Data Book,1989-1992 Current Population Survey, and Tiger/Line 1997 Files. | |
| Social Security Death Index (SSDI) Searchable database of the Death Master File (DMF) from the Social Security Administration (SSA). | |
| Statistics |
| General |
| Federal Interagency Forum on Child and Family Statistics Federal and state statistics and reports on children and their families, including: population and family characteristics, economic security, health, and social environment, and education. | |
| FedStats Statistics from 70+ United States government agencies. | |
| HCUPnet A tool for identifying, tracking, analyzing, and comparing statistics on hospitals at the national, regional, and State level. | |
| State Data Centers | |
| U.S. Bureau of Economic Analysis (BEA) - Regional Accounts Data Gross state product, state personal income, local area personal income. | |
| U.S. Census Bureau Social, demographic, and economic information by various geographic units. | |
| Health |
| Administration on Aging - Statistical Information on Older Persons | |
| AgingStats.gov Web Site of the Federal Interagency Forum on Aging-Related Statistics | |
| CDC Wonder Single point of access to a variety of CDC reports, guidelines, and numeric public health data, including mortality data, SEER and vital stats. Provided by Virginia Commonwealth University. | |
| Centers for Disease Control and Prevention (CDC) Provides information on public health data and vital statistics as well as diseases, injuries, disabilities. | |
| CMS (Center for Medicare and Medicaid) Data and Statistics Medicare, Medicaid, & managed care statistics. State information on topics such as:long-term care, Medicare, Medicaid, SCHIP, managed care, state health reform and waivers, etc. | |
| DATA2010: The Healthy People 2010 Database Interactive database system. Contains the most recent monitoring data for tracking Healthy People 2010. | |
| Employee Benefit Research Institute (EBRI) Nonprofit, nonpartisan organization. Focus: data dissemination, policy research, and education on economic security and employee benefits. | |
| FastStats A-Z Alphabetical listing of topics and corresponding statistics from the Center for Disease Control (CDC). | |
| Health & Behavior Research Funding Directory Research funding sources in the health-related behavioral and social sciences. | |
| HSLS (Health Sciences Library System - University of Pittsburgh Libraries) Health Statistics Guide to locating health statistics and resources available on the World Wide Web and at the HSLS. | |
| Kids Count Data - provided by the Annie E. Casey Foundation State-by-state and national indicators of child well-being. | |
| National Association for Public Health Statistics - Health Statistics Links Quick links to the department or agencies that provides health statistics in individual states/territories. | |
| National Center for Health Statistics (NCHS) Federal Government's principal vital and health statistics agency. | |
| National Institutes of Health (NIH) Federal focal point for medical research in the United States | |
| Statistics and Resources - School of Public Health amd Community Medicine at the University of Washington Provides links to statistical sources for Behavior and Risk Factors; Diseases and Conditions; Economics, Policy and Programs; Family and Reproduction; Health Care; Mortality/Death; and Populations and Demographics. | |
| University of Michigan Documents Center Statistical Resources on the Web - Health Statistics Health statistics from government and other sources. | |
| Health Industry/Advocacy/Professions |
| AARP - American Association of Retired Persons Nonprofit, nonpartisan association concerned with aging. | |
| Agency for Healthcare Research and Quality (AHRQ) - (formerly the Agency for Health Care Policy and Research) Supports research designed to improve the quality of health care, reduce its cost, and broaden access to essential services. | |
| Alliance for Health Reform Provides information in a number of formats to journalists, elected officials and their staffs, and other shapers of public opinion. | |
| American Association of Health Plans (AAHP) National trade association representing 1,000+ health maintenance organizations, preferred provider organizations, point-of-service plans, and other similar health plans. | |
| American College of Healthcare Executives (ACHE) International professional society of healthcare executives. | |
| American Health Quality Association (AHQA) National, not-for-profit membership association of independent, community-based quality improvement organizations (QIOs). Also known as peer review organizations, or PROs, for their Medicare quality improvement work. Works collaboratively with health care practitioners, health plans and hospitals, to analyze health care patterns, identify opportunities for improvement and interpret and share information about current science and best practices with physicians, hospitals and health plans. | |
| American Hospital Association (AHA) Membership organization composed of: short-term hospitals, long-term hospitals, headquarters of health care systems, nonhospital preacute and postacute facilities, and hospital-affiliated educational programs (such as hospital-affiliated schools of nursing or graduate programs in health administration). | |
| American Medical Association (AMA) Professional association comprised of county medical societies and physicians. | |
| American Nurses Association (ANA) Full-service professional association representing the entire registered nurse population. | |
| American Public Health Association (APHA) Organization of researchers, health service providers, administrators, teachers, and other health workers in the public health field. | |
| American Public Human Services Association (APHSA) Nonprofit, bipartisan organization of individuals and agencies concerned with human services. | |
| Association of American Medical Colleges (AAMC) Nonprofit association of United States and Canadian medical schools, teaching hospitals and health systems, academic and professional societies and the nation's medical students and residents. | |
| Center for Policy Alternatives (CFPA) Washington, D.C.- based non-profit, bipartisan center that works with state legislators, other resource policy centers and grassroots organizations to influence public policy. | |
| Center on Budget and Policy Priorities (CBPP) Nonpartisan research organization and policy institute that conducts research and analysis on a range of government policies and programs, with an emphasis on those affecting low- and moderate income people. | |
| Children's Defense Fund (CDF) Private, nonprofit organization supported by foundations, corporation grants, and individual donations. Advocates for children. | |
| Children's Health Fund (CHF) Focus: providing health care to the nation's most medically underserved children through the development and support of innovative primary care medical programs and the promotion of guaranteed access to appropriate health care for all children. | |
| Executive Office of the President White House offices and agencies, including Office of Management and Budget (OMB), Office of the Vice President, etc. | |
| Foundation for Accountability (FAACT) Not-for-profit organization dedicated to helping Americans make better health care decisions by working to ensure that Americans have clear, accurate information about quality. | |
| Gerontological Society of America (GSA) Health care professionals interested in research and education on the aging process. | |
| Health by the Numbers - provided by Center for the Advancement of Health Links to federal and private organizations that provide statistics on prevalence and interventions for specific chronic diseases and categories. | |
| Health Insurance Association of America (HIAA) Trade association representing the private health care system. | |
| Health Resources and Services Administration (HRSA) Helps provide health resources for medically underserved populations. | |
| Healthcare Financial Management Association (HFMA) Personal membership organization of financial management professionals employed by hospitals, integrated delivery systems, long-term and ambulatory care facilities, managed care organizations, medical group practices, public accounting and consulting firms, insurance companies, government agencies, and other healthcare organizations. | |
| International Society for Pharmacoeconomics and Outcomes Research (ISPOR) International non-profit organization formed to promote the practice and science of pharmacoeconomics and health outcomes assessment. | |
| John's Hopkins University - Women's and Children's Health Policy Center Conducts and disseminates research to inform maternal and child health policies and programs, and the practice of maternal and child health nationally. | |
| Joint Commission on Accreditation of Healthcare Organizations (JCAHO) Independent, not-for-profit organization. Evaluates and accredits nearly 20,000 health care organizations and programs in the United States. | |
| Maternal and Child Health Bureau (MCHB) Provides leadership and resources to advance the health of mothers, infants children and adolescents. | |
| Moving Ideas Network - Health Care Policy Links Current news and information about health policy from a variety of sources. Provided by the Moving Ideas Network - a consortium of public policy organizations and advocacy groups. | |
| National Academy of Social Insurance (NASI) Private, non-partisan resource center. Conducts research, provides forum for the exchange of ideas on important issues in the field of health care. Scope includes: Social security, Medicare, and Workers' Compensation. | |
| National Association for Home Care & Hospice (NAHC) Trade association representing the interests and concerns of home care agencies, hospices, home care aide organizations, and medical equipment suppliers. | |
| National Association of Public Hospitals and Health Systems (NAPH) Organization of major teaching hospitals and academic health science centers. | |
| National Coalition on Health Care Non-profit, non-partisan alliance comprised of 96 groups.Seeks to focus public attention on the problems and inequities inherent in American health care and to provide people with information. | |
| National Committee for Quality Assurance (NCQA) Private, non-profit organization. Assesses and reports on the quality of the nation's health care plans. | |
| National Committee for Quality Health Care (NCQHC) Membership and educational organization comprised of senior leaders from allsectors of the health care industry who share an interest in the promotion of quality health care. | |
| National Conference of State Legislatures - Health Policy Issues Denver - based, bipartisan organization that serves the lawmakers and staffs of the 50 states, its commonwealths and territories. Research and publications about health policy. | |
| National Medical Association (NMA) Organization of African American physicians. Focus is on parity and justice in medicine and the elimination of disparities in health. | |
| National Quality Forum for Health Care Quality Measurement and Reporting (NQF) Not-for-profit membership organization created to develop and implement a national strategy for health care quality measurement and reporting. | |
| Partners in Information Access for the Public Health Workforce A collaboration of U.S. government agencies, public health organizations and health sciences libraries to help public health workforce find and use information effectively to improve and protect the public's health | |
| Health Policy Foundations/Funding Sources |
| Meta Sites |
| Catalog of Federal Domestic Assistance Covers all federal agencies, searchable by subject and agency. | |
| Federal Commons: Health- Related Grants Federal grant information related to health. | |
| Foundation Center Collects, organizes, analyzes, and disseminates information on foundations, corporate giving, and related subjects. | |
| Grant Information HHS Agencies Links to grant information pages at health-related government sites. | |
| Grantmakers in Health Nonprofit educational organization. Resource center on and for health philanthropy. | |
| Habit Newsletter For researchers and others seeking to raise the priority of and resources devoted to health and behavior research. To subscribe send email to: majordomo@list.cfah.org | |
| Specific Sources |
| AARP Andrus Foundation Funds aging-related research and educational grants. | |
| Agency for Healthcare Research and Quality (AHRQ) - Funding Opportunities Grant announcements, contract solicitations, and research training opportunities. | |
| Anne E. Casey Foundation Private, philanthropic organization. Supports demonstrations, evaluations, and advocacy aimed at helping disadvntaged children who are at risk of poor educational , economic, social and health outcomes. | |
| Center for Medicare & Medicaid Services Administers the Medicare, Medicaid programs and the State Children's Health Insurance Program (SCHIP). | |
| Centers for Disease Control and Prevention Funding Opportunities | |
| Century Foundation (formerly the Twentieth Century Fund) Commissions individuals with a strong interest and background in a particular subject to carry out research projects and produce book-length manuscripts. | |
| CMS (Centers for Medicare and Medicaid) Contracting and Grant Opportunities Grant programs, applications and instructions. | |
| Commonwealth Fund Philanthropic foundation. Program areas include: health care services, minority health, the elderly, and developing the capacities of children and young people. | |
| Henry J. Kaiser Family Foundation Independent philanthropy that develops and runs its own research and communications programs, often in partnership with outside organizations. Focus on three main areas: Health Policy, Media and Public Education, and Health and Development in South Africa. | |
| John A. Hartford Foundation Broad mission is to increase the nation's capacity to provide effective and affordable elder care, | |
| Nathan Cummings Foundation Focus on the link between physical health and psychological, social, economic, and environmental factors. | |
| National Institute on Aging, a part of the National Institutes of Health NIA, one of the 27 Institutes and Centers of NIH, leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life. The web site provides inforamtion on health, research, grants and funding. | |
| NIH (National Institutes of Health): Grants and Funding Opportunities Information about NIH grant and fellowship programs, applying for a grant or fellowship, etc.http://www.grants.nih.gov/grants/guide/pa-files/index.html | |
| NIH (National Institutes of Health): Program Announcements | |
| Office of the Assistant Secretary for Planning and Evaluation - Office of Disability, Aging and Long-Term Care Policy Develops, analyzes, evaluates and coordinates HHS policies and programs which support the independence, productivity, health and long-term care needs of children, working age adults and older persons with disabilities. | |
| Pew Charitable Trust - Health and Human Services National philanthropy with strong commitment to Philadelphia region. Focus on six program areas including health and human services. | |
| Retirement Research Foundation Private foundation dedicated to the needs and quality of life of older Americans. | |
| W.K. Kellogg Foundation Nonprofit, grant-making organization. Focus: health, philanthropy and volunteerism, food systems and rural development, youth and education, etc. | |
| Policy Research Organizations |
| Non-university Based |
| Academy Health Provides original policy analyses and syntheses of leading research. | |
| American Enterprise Institute for Public Policy Research Think tank dedicated to preserving and strenghtening government, private enterprise, vital cultural and political institutions, a strong foreign policy, and national defense. Conducts research on health policy including: Medicare reform, the performance of managed care and hospital markets, pricing and advertising strategies in health- related markets, FDA regulation of pharmaceuticals, and ethical issues in biomedical research. | |
| Center for Studying Health System Change (CSHSC) Non-partisan, policy research organization, affiliated with Mathematica Policy Research, Inc. (see below). Focus: how the country's health care systems are changing and how these changes are affecting people at the community level. | |
| Economic and Social Research Institute (ESRI) Nonprofit, nonpartisan organization that specializes in health and social policy research: | |
| Heritage Foundation Think tank with focus on formulating and promoting conservative public policies. Conducts research and publishes in a variety of health policyareas including: Medicare, Medicaid, healthcare reform and prescription drugs. | |
| Institute for Health Policy Solutions Independent not-for-profit organization. Identifies, analyzes, and develops strategies to solve health care system problems. | |
| Institute for the Future of Aging Services Housed within the American Association of Homes and Services for the Aging (AAHSA), a not-for-profit association representing more than 5,600 nonprofit housing and service providers for older adults. Focus: meeting the needs of our older citizens. | |
| Kaiser Commission on Medicaid and the Uninsured Policy institute and forum for analyzing health care coverage and access for the low-income population and assessing options for reform. | |
| Maternal and Child Health Policy Research Center Health policy group with three collaborating organizations. Addresses the financing, delivery, and quality of health services to children. | |
| Mathematica Policy Research Inc. Conducts evaluations of policies and programs in health care, welfare, education, nutrition, employment, and early childhood development. | |
| Milbank Memorial Fund Endowed national foundation that supports nonpartisan analysis, study, research and communication on significant issues in health policy. | |
| National Academy for State Health Policy (NASHP) Non-profit, mutidisciplinary forum of and for state health policy leaders from the executive and legislative branches. Conducts policy analysis, provides training and technical assistance to states, produces informational resources, and convenes state, regional, and national forums, including an annual state health policy conference for policy makers from across the country. | |
| National Academy of Science - Institute of Medicine Advances and disseminates information and advice concerning health and science policy to government, the corporate sector, the professions and the public. | |
| National Center for Policy Analysis (NCPA) Nonprofit, public policy research institute. Funded by individuals, corporations and foundations who believe in private sector solutions to public policy problems. Focus on a variety of issues, including healthcare. | |
| National Conference of State Legislatures (NCSL) Denver - based, bipartisan organization that serves the lawmakers and staffs of the 50 states, and United States commonwealths and territories. The Conference is a source for research and publications. | |
| Office of the Assistant Secretary for Planning and Evaluation - Office of Health Policy (HP) Responsible for major activities in the areas of policy coordination, legislation development, strategic planning, policy research and evaluation, and economic analysis. | |
| Public Health Foundation National, non-profit organization dedicated to achieving healthy communities through research, training, and technical assistance. | |
| RAND Non-profit organization, performs research and analysis. | |
| RAND - Health - Related Research Focus on health care systems and how the organization and financing of care affects costs, quality and access. | |
| Research Triangle Institute (RTI) An independent, nonprofit organization based in North Carolina with offices in eight other locations. Conducts research in five major areas: advanced technologies, the environment, health and pharmaceuticals, public policy and survey research and statistics. | |
| State Coverage Initiatives - provided by the Academy for Health Services Research and Health Policy Extensive information about health insurance coverage in the United States. Includes a State Coverage Matrix of information on strategies employed by all 50 states and the District of Columbia. | |
| United Hospital Fund - New York City Health services research and philanthropic organization that addresses issues affecting hospitals and health care in New York City. | |
| Urban Institute - Research by Topic Search for research on Medicare, Medicaid, elderly/ aging, and health. | |
| Urban Institute - What's New To subscribe: Send email to Commands@ListServe.com. In the message body type: subscribe anfdatausers. Or send email to: anfdatausers-off@LR.ListServ.com. For monthly electronic update go to the following. | |
| University Based |
| Alabama | |
| Duke University Center for Health Policy, Law and Management Interdisciplinary research drawing from the social sciences, law and management. | |
| Duke University Center for Health Policy, Law and Management - Health Policy Cyberexchange State-level health policy links. | |
| Florida State Unniversity - Institute for Child Health Policy Focus on access, utilization, cost, quality, and family involvement of children in managed care. Emphasis on children with special health care needs. | |
| George Washington University - The Center for Health Services Research and Policy (CHSRP - formerly the Center for Health Policy Research) Identifies, monitors, and analyzes emerging issues in federal and state health law and policy, and evaluates the effects of changing federal policies on health care access, quality and cost at the state and local levels. | |
| Georgetown University - Institute for Health Care Research and Policy Multi disciplinary research on key issues in health policy and health services. | |
| Nebraska | |
| New Jersey Provides impartial policy analysis, research, training, facilitation and consultation on important state health policy issues in New Jersey and other states. | |
| New School - The Health Policy Research Center Health policy think-tank established in 1997, and based in New York City. | |
| New York University - Center for Health and Public Service Research (CHPSR) Applied research that addresses policy, financial, and organizational issues concerning the delivery of health care and social services. Focuses primarily on health care and social service issues affecting vulnerable populations in urban areas. | |
| South Carolina | |
| Tennessee | |
| University of California at Berkeley - Center for Health and Public Policy Studies Conducts research on current issues in health policy and politics that affect California and the nation. | |
| University of California at Los Angeles - Center for Health Policy Research Conducts research on national and state health policy issues. Provides policy analysis, data and training to policy makers and community leaders. | |
| University of Minnesota - Health Services Research and Policy - School of Public Health - Research and Publications Research areas include: public and private financing of health services, access to health care across populations, issues of equity and justice in the allocation of health care resources, and gov't involvement and public policy in health services and technology. | |
| University of North Carolina at Chapel Hill - Cecil G. Sheps Center for Health Service Research Focus on the accessibility, adequacy, organization, cost and effectiveness of health care services. | |
| University of Wisconsin - Madison - Wisconsin Network for Health Policy Research Resource for stimulating, creating, and communicating health policy research. | |
| Wisconsin Health Data Portal | |
| U.S. Government |
| Judicial Branch |
| Findlaw Provides access to the full text of United States Supreme Court cases 1893+, United States Courts of Appeals, federal district court decisions, United States State laws, cases and codes, and more. | |
| Legislative Branch |
| Congressional Budget Office | |
| General Accounting Office | |
| Library of Congress | |
| U.S. House of Representatives | |
| U.S. Senate | |
| General Indexes |
| Catalogs of Government Publications |
| Monthly catalog of U.S. Government Publications (MOCAT) Searchable catalog of United States Government publications from 1994 - present. | |
| National Technical Information Service (NTIS) Bibliographic information for technical publications and data files produced by government contractors and unavailable from the Government Printing Office (GPO). | |
| Search by Agency |
| Federal Agency Internet Sites - GPO Access View a list of Federal Government agencies and sub-agencies or search the list of Federal Agency Internet sites by keyword. Includes the executive, judicial, and legislative branches; independent agencies; boards, commissions and committees; and quasi-official offices. | |
| Search by Topic |
| Federal Government Resources on the Web - University of Michigan Documents Center Search by subject categories or key words. | |
| Search Multiple Databases |
| FirstGov.gov One-stop access for information available from the United States government. Consumer orientation -- designed for use by general public. | |
| Healthfinder Consumer-oriented information from the United States Department of Health and Human Services (DHHS). | |
| Multi-Data Base Search - GPO Access Official site of the United States Government Printing Office. Search the Federal Register, Code of Federal Regulations, Congressional Bills, Congressional Record, Congressional Documents and Reports, Public Laws, United States Code and more. | |
| PubMed National Library of Medicine's (NLM) MEDLINE and Pre-MEDLINE databases, as well as others. Covers medicine, nursing, dentistry, veterinary medicine, the health care system and the pre-clinical sciences. 1966-present. Contains bibliographic citations and author abstracts from 3,800+ current biomedical journals published in the United States and 70 foreign countries. Provides links to participating on-line journals. Boolean searching available. | |
| Thomas Provided by the Library of Congress. Contains House and Senate bills and public laws. Use instead of GPO Access to determine bill status, roll call votes, etc. | |
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